Author(s): David Oliviere
Patient participation and user involvement are central to current thinking about the effective delivery of desired healthcare outcomes. Working with the person who lies behind every patient is core to palliative care. A voice can only become significant when it is listened to and acted upon. With palliative care increasingly addressing the needs of people with a variety of conditions in a range of settings, as well as with advances in research, technology, and information, the challenge to be 'a voice for the voiceless' is greater than ever. This book addresses key aspects in the provision of patient-centred palliative care and tracks significant developments in user involvement. It sets the philosophy within the cultural, social and political context of modern healthcare, particularly addressing issues of quality, standards, education and bereavement. A key component in the delivery of high quality palliative care is the multi-professional team. Following a discussion of teamwork, five core professions present a critical analysis of their working practices. The book concludes with a commentary from a palliative care user and a bereaved carer.
A 'how to' guide for healthcare professionals on delivering patient-centred care and effective user involvement in palliative care.
This book is a timely reminder that we need to remain patient focused, and that patient centred care must not be lost or obscured by advances in palliative medicine or by the increasingly informed and multicultural societies in which we work. The book should be of interest to all members of the palliative care team, and particularly to those involved in management and quality assurance. IAHPC Website
PART 1: THE ROLE OF THE PATIENT IN PALLIATIVE CARE; 1. A voice for the voiceless; 2. The changing National Health Service, user involvement and palliative care; 3. Developments in user organisations; 4. Quality issues in palliative and supportive care; 5. Education in palliative care; 6. Cultural difference and palliative care; 7. Bereavement care; PART 2: MULTI-PROFESSIONAL PERSPECTIVES; 8. Multi-professional teamwork; 9. Palliative medicine; 10. Palliative nursing; 11. Palliative care social work; 12. Palliative care and chaplaincy; 13. Palliative care and psychology; 14. Conclusions; 15. Conclusions: thoughts of a palliative care user