The Accidental Carer: A Practical Guide Through Uncertainty by Palliative Home Carers
"Ros is a remarkable woman. Most of us after going through a journey like hers would not have the energy or commitment to create a resource for the benefit of others. But she has, for which I am extremely grateful, as I am sure you will be too. It has truly been a privilege for our team to support her and this project," said Professor Merryn Gott Director, Te Arai Palliative Care and End of Life Research Group, University of Auckland; "This book is a real treasure. It is practical, written with a wonderful light-heartedness in succinct short chapters and gives practical examples.This truly is a manual for caregiving coming from a place of experience, not a place of theory I love four year old Minnas' gorgeous illustrations in the book, created from her 'being a grand- daughter" experience." - Liese Groot-Alberts, Grief therapist and international palliative care educator; "Ros Capper is one of those pragmatic people who brings clarity to what is blindingly obvious. So, when you read her book The Accidental Carer, I bet you'll say, "oh yeah, that makes perfect sense; why didn't I think of it?" Well, the answer to that is you didn't think of it because your world has suddenly been turned upside down! You've become an 'accidental carer' to your loved one, who has just received a shock diagnosis and faces an uncertain future. Looking after someone who has been given an end of life diagnosis is a journey in stages and Ros Capper has been there, having cared for her beloved, now late husband Mike. Invaluable and practical, Ros's guide will be by your side throughout; helping and supporting you as you care for your loved one. Her guide offers countless practical tips, including: how to build a 'home team' to support you; where to go to get financial help; planning for the future. And then there's those conversations about dying; the hard stuff that Ros's book not only makes easier, but emotionally and practically fulfilling." - Al Morrison, State Services Commissioner
Ros Capper was born and educated in Wellington, and now lives in Auckland. She relishes social change initiatives and her early career experiences include: New Mother Support Groups, the Tall Poppies (now integrated into Thought Partners), the Natural Step, and CoCounselling International. Ros has returned to her vocational roots after realising home-based palliative carers and their support people are seeking hand-on practical information by those who have lived this experience. Ros was a palliative carer for her husband Mike in their home, where she explored innovative ways of attracting support. She would like to invite others similarly experienced to share their learnings on the website designed to accompany her book, so that they may be supported and empowered.
FOREWORD Section 1. INTRODUCTION Section 2. MANAGING THE MEDICAL SIDE OF THINGS Section 3. HOW A HOME-CARE HOME MAY BE DIFFERENT Section 4. PRIORITIES GUIDE DECISIONS Section 5. THE HOME TEAM Section 6. CREATIVE GIFTS Section 7. THE CHOICE TO SUSTAIN YOURSELF Section 8. 'AND NOW WHAT?' Section 9. CHOICES Section 10. SACRED MYSTERIES HEARTFELT ACKNOWLEDGMENTS