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Health > Palliative Care

Large 9780473383039

The Accidental Carer: A Practical Guide Through Uncertainty by Palliative Home Carers by Ros Capper

$25.00 NZD

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Category: Cancer

THERE is no right or wrong way to care for someone given an end-of-life or uncertain diagnosis, but this common experience can be steeped in such mystery people simply don't know how to cope. After caring for her beloved husband Mike, pioneering Aucklander Ros Capper has taken her first-hand experience and turned it into a roadmap for others, with the publication of her book, The Accidental Carer. Palliative care is care that gives comfort - it does not cure. If the person you are caring for has an illness with an uncertain future, you may be called a 'palliative carer' by those in the medical system and likely, feel woefully underprepared. When her husband was diagnosed with cancer, Ros spent three years caring for him, supported by friends, family and health professionals. It was only after Mike died that she realised how little firsthand guidance was available to her and others. So, being the philanthropic and intrepid woman that she is, Ros decided to write a book and create a website resource www.accidentalcarer.com, to help fill the void and support others. "Ros is a remarkable woman. Most of us after going through a journey like hers would not have the energy or commitment to create a resource for the benefit of others. But she has, for which I am extremely grateful, as I am sure you will be too. It has truly been a privilege for our team to support her and this project," said Professor Merryn Gott Director, Te Arai Palliative Care and End of Life Research Group, University of Auckland. "The lack of information written by home-based palliative carers intrigued me. What I at first thought was a gap I soon realised was a chasm, hidden in plain sight." Ros became a co-researcher with the University of Auckland Te Arai Palliative Care and End of Life Research group, who gave their full support to the research and writing of The Accidental Carer. Ros said, "So as far as I am aware, this guide, designed to shine a light on the choices made by palliative carers at home, is the first of its kind in New Zealand. To everyone who reads this guide, I genuinely hope it inspires you to do your best - that is all we as carers can do. "Just as importantly, I hope it encourages you to reach out for help - palliative care is not something to do alone at home." The Accidental Carer features the stories of five family groups of home-based palliative carers (including Ros), whose stories offer comfort to others as they undergo emotional and physical challenges. The potential for burn out is high, as carers experience a mother-load of uncertainty, grief and exhaustion. Families in this book also share the gifts they found amidst these. "Sharing stories is an age-old way of making meaning, being inspired and strengthening our spirits to carry on," said Ros. With a clear and kind voice, The Accidental Carer gives practical advice on all aspects of end of life management ranging from medical appointments and communication to building a support network, novel ways to enlist support and learn resilience. ...Show more

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Large 9781846685828

Being Mortal : Illness Medicine and What Matters in the End by Atul Gawande

$25.00 NZD

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Category: Palliative Care | Series: Wellcome Ser.

For most of human history, death was a common, ever-present possibility. It didn't matter whether you were five or fifty - every day was a roll of the dice. But now, as medical advances push the boundaries of survival further each year, we have become increasingly detached from the reality of being mort al. So here is a book about the modern experience of mortality - about what it's like to get old and die, how medicine has changed this and how it hasn't, where our ideas about death have gone wrong. With his trademark mix of perceptiveness and sensitivity, Atul Gawande outlines a story that crosses the globe, as he examines his experiences as a surgeon and those of his patients and family, and learns to accept the limits of what he can do.Never before has aging been such an important topic. The systems that we have put in place to manage our mortality are manifestly failing; but, as Gawande reveals, it doesn't have to be this way. The ultimate goal, after all, is not a good death, but a good life - all the way to the very end.Published in partnership with the Wellcome Collection.WELLCOME COLLECTIONWellcome Collection is a free museum and library that aims to challenge how we think and feel about health. Inspired by the medical objects and curiosities collected by Henry Wellcome, it connects science, medicine, life and art. Wellcome Collection exhibitions, events and books explore a diverse range of subjects, including consciousness, forensic medicine, emotions, sexology, identity and death. Wellcome Collection is part of Wellcome, a global charitable foundation that exists to improve health for everyone by helping great ideas to thrive, funding over 14,000 researchers and projects in more than 70 countries.wellcomecollection.org ...Show more

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Large 9780335213238

Loss, Change and Bereavement in Palliative Care by Edited by Pam Firth, Gill Luff, David Oliviere

$70.00 NZD

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Category: Palliative Care

How do professionals meet the needs of bereaved people? How do professionals undertake best practice with individuals, groups, families and communities? What are the implications for employing research to influence practice? This book provides a resource for working with a complex range of loss situati ons and includes chapters on childhood bereavement, and individual and family responses to loss and change. It contains the most up-to-date work in the field presented by experienced practitioners and researchers and is relevant not only for those working in specialist palliative care settings, but for professionals in general health and social care sectors. Strong links are maintained between research and good practice throughout the book. Contributors Lesley Adshead, Jenny Altschuler, Peter Beresford, Grace Christ, Suzy Croft, Pam Firth, Shirley Firth, Richard Harding, Felicity Hearn, Jennie Lester, Gill Luff, Linda Machin, Jan McLaren, David Oliviere, Ann Quinn, Phyllis Silverman, Jean Walker, Karen Wilman ...Show more

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Large 9780199206414

Resilience in Palliative Care: Achievement in Adversity by Barbara Munroe & Olivere

$120.00 NZD

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Category: Palliative Care

The first book of its kind, Resilience and Palliative Care - Achievement in Adversity takes the increasing international literature on resilience and applies it to palliative and end-of-life care. The book offers an overview of all key aspects of palliative care, presented through a resilience perspect ive. Why do some patients and families break down while others surmounts the challenges facing them? What interventions strengthen individual, family and community coping? This book aims to facilitate change with people facing the crisis of death, dying and bereavement. Much of the existing literature has focused on risk, problems and vulnerability; the emerging concept of resilience focuses on strengths and possibilities. The 'total pain'/'total care' approach pioneered by Dame Cicely Saunders and St Christopher's Hospice now needs reinterpreting in the light of changing contexts and challenges. The realities of demographic change and resource-constrained health and social care environments have generated an increasingly risk focused approach to service delivery. A narrowly medicalised approach has inevitable limitations; professional care alone will be unable to meet need and demand in the face of ageing populations, changing patterns of illness and the need for equity. ...Show more

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Large 9781848190733

Comforting Touch in Dementia and at End of Life : Take My Hand by Barbara Goldschmidt

$45.00 NZD

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Category: Palliative Care

Hand massage is a positive and meaningful way of reaching out and providing comfort to those who are elderly, ill or nearing the end of life, and it can be particularly effective for people with dementia who respond well to non-verbal interaction. This book teaches an easy 30 minute hand massage sequenc e. ...Show more

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Large ethical

Ethical Foundations of Palliative Care for Alzheimer Disease by Ruth B. Purtilo

$107.00 NZD

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Category: Palliative Care

Alzheimer disease afflicts more than twelve million people worldwide, and its incidence is increasing at a staggering rate. People with the disorder are living longer than have those in previous generations, and they require interventions for quality-of-life issues associated with palliative care. Howev er, the symptoms of Alzheimer disease often fail to place such persons into settings where palliative care resources are available to them. Indeed, clinicians and other caregivers may be unsure about what constitutes effective palliation in these cases. At the same time, the ethical issues involved in providing end-of-life care to persons with Alzheimer disease remain on the margins of mainstream bioethics. In Ethical Foundations of Palliative Care for Alzheimer Disease, leading ethicists and clinicians from the United States and Europe explore ethical and scientific concerns about the diagnosis and prognosis of Alzheimer disease, challenges arising from applying palliative procedures to its symptoms, key philosophical and theological concepts central to our understanding of the disease and to end-of-life decisions, and the changing patterns of relevant medical, social, and economic policies. Cross-cultural, multidisciplinary, and state-of-the-art, this volume is a unique and important resource for bioethicists, clinicians, and policy makers everywhere. Contributors: David A. Bennahum, M.D., University of New Mexico; Pierre Boitte, Ph.D., Catholic University of Lille, France; Roger A. Brumback, M.D., Creighton University Medical Center; Wim J. M. Dekkers, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Elizabeth Furlong, R.N., Ph.D., J.D., Creighton University Medical Center; Eugenijus Gefenas, M.D., Ph.D., Vilnius University, Lithuania; Bert Gordijn, Ph.D., University Medical Centre Nijmegen, The Netherlands; Amy M. Haddad, R.N., Ph.D., Creighton University Medical Center; Soren Holm, M.D., Ph.D., Dr.Med.Sci., University of Manchester; Franz J. Illhardt, D.D., Ph.D., Freiburg University; Rien Janssens, Ph.D., University Medical Centre Nijmegen, The Netherlands; Givi Javashvili, M.D., Ph.D., State Medical Academy of Georgia, Tbilisi; Judith Lee Kissell, Ph.D., Creighton University Medical Center; Gunilla Nordenram, D.D.S., Ph.D., Karolinska Institute, Stockholm; Richard L. O'Brien, M.D., Creighton University Medical Center; Marcel G. M. Olde Rikkert, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Winifred J. Ellenchild Pinch, R.N., Ed.D., Creighton University Medical Center; Patricio F. Reyes, M.D., Creighton University Medical Center; Anne-Sophie Rigaud, M.D., Ph.D., Hopital Broca, Paris; Linda S. Scheirton, Ph.D., Creighton University Medical Center; Jos V. M. Welie, M.Med.S., J.D., Ph.D., Creighton University Medical Center. "This is the finest set of perspectives on dementia, Alzheimer disease, and dying that has yet been produced. It combines some of the best thinking in the United States with insights from Europe, making it truly unique. Highly recommended for specialists in dementia care, hospice, and bioethicists."--Stephen G. Post, Case Western University ...Show more

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Large volunteers

Volunteers in Hospice and Palliative Care: A Resource for Voluntary Service Managers by Edited by Rosalind Scott, Stephen Howlett

$80.00 NZD

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Category: Palliative Care

The book provides comprehensive, practical guidelines on the responsibilities of those who lead, co-ordinate and manage volunteers in small hospices, large specialist palliative care units, and in general hospitals with palliative care teams. Volunteers are key workers, who often perform difficult and i mportant work. In the United Kingdom alone there are thousands of volunteers in hospice work, a small proportion doing work with patients, and the vast majority doing equally valuable work such as driving, sitting with relatives, manning charity shops and telephones. As a result, Europe, Australia, the United States and Canada are very interested in the United Kingdom's use of volunteers. Aimed primarily at Voluntary Services Managers in small hospices, large specialist palliative care units, and in general hospitals with palliative care teams, this updated second edition covers volunteer selection, training, supervision and support, and legal and ethical considerations. Information is presented in an easily accessible way, using key points, summary panels and checklists. This book will also appeal to the volunteers themselves. ...Show more

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Large doorways 9781786126344

Doorways into Dying: Innovative Teachings for End of Life by Ingrid Ross & Kay Ryan

$30.00 NZD

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Category: Grief & Loss

In Doorways into Dying: Innovative Teaching for End of Life, Ingrid Rose and Kay Ryan present techniques and tools for communicating with those in out-of-ordinary states of consciousness such as those found in dementia, coma or the dying experience. Methods are presented that are useful to medical staff , caregivers, relatives and friends in making links between the outside world and the inner worlds of those who are ostensibly unable to communicate. The slight movement of a finger, the flicker of an eyelid, and other signals, are the building blocks of communication, useful in gaining understanding of the needs of the patient. This book describes how we can approach those who are ill, near death, or dying, in a way that values all experience as holding potential meaning for the person. How to connect with others in order to support them on their journeys is laid out here through the introduction of theoretical concepts, case studies and examples, as well as exercises for reader to practise ...Show more

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Large 9780309063722

Approaching Death: Improving Care at the End of Life by Institute of Medicine

$77.00 NZD

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Category: Palliative Care

When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening.Approaching Death refl ects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care.This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: -- Determining diagnosis and prognosis and communicating these to patient and family.-- Establishing clinical and personal goals.-- Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances.Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done". ...Show more

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Large 9781848507036

The Soul Midwives' Handbook: The Holistic and Spiritual Care of the Dying by Felicity Warner

$42.00 NZD

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Category: Palliative Care

Soul Midwives, a movement begun by Felicity Warner, has changed the face of modern holistic and spiritual palliative care in the UK and abroad. Soul Midwives are holistic and spiritual companions to the dying. They draw on traditional skills, now largely forgotten, applying them to our modern world to e ase the passage of those who are dying. Their services are used within people's own homes, in hospices and in care homes. Anyone with an open and compassionate heart and a desire to help others can train to become a Soul Midwife. This book will guide you through the core principles and techniques of this practice. ...Show more

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Large 9781843106784

Speaking of Dying: A practical guide to using counselling skills in palliative care by Louis Heyse-Moore

$55.00 NZD

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Category: Palliative Care

Good counselling skills are often not taught to the professionals who need them most. Compassionate and tactful communication skills can make the difference between an awkward encounter with a dying patient, and an engaging, empathic bond between two people. Louis Heyse-Moore draws on his wealth of exp erience as a trained counsellor and palliative medicine specialist. Covering difficult subjects such as breaking the news of terminal illness to a patient, euthanasia and the effect of working with patients on carers, Speaking of Dying is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home. Complete with a clear explanation of both counselling and medical terminology, this hands-on guide will be an invaluable companion to anyone working in palliative care. ...Show more

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Large 9781250160843

Modern Death - How Medicine Changed the End of Life by Haider Warraich

$50.00 NZD

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Category: Growing Older

There is no more universal truth in life than death. No matter who you are, it is certain that one day you will die, but the mechanics and understanding of that experience will differ greatly in today's modern age. Dr. Haider Warraich is a young and brilliant new voice in the conversation about death an d dying started by Dr. Sherwin Nuland and Atul Gawande.Dr. Warraich takes a broader look at how we die today, from the cellular level up to the very definition of death itself. The most basic aspects of dying--thewhys, wheres, whens, andhows--are almost nothing like what they were mere decades ago. Beyond its ecology, epidemiology, and economics, the very ethos of death has changed.Modern Death,Dr. Warraich's debut book, will explore the rituals and language of dying that have developed in the last century, and how modern technology has not only changed the hows, whens, and wheres of death, but the what of death. Delving into the vast body of research on the evolving nature of death,Modern Death will provide readers with an enriched understanding of how death differs from the past, what our ancestors got right, and how trends and events have transformed this most final of human experiences. ...Show more

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